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Data Query And downloadsPublicationsIssue TrackerPost-DUC SubmissionFAQsRequest a demo

What Can I Do While I Wait for My DUC Approval?

Once you complete and sign your sections of the Data Use Certification (DUC), an authorized signing official (SO) at your institution and the Data Access Committee at the National Institute of Health (NIH) will need to review and sign off on your DUC.  

This means there will be a waiting period between when you sign your DUC and when you have permission to download the NIH Brain Development Cohorts (NBDC) participant-level data. You will still be able to explore many exciting features in Lasso while you wait for full access!

Select your study of interest to get started.

The NBDC data hub provides the ability to switch between The Adolescent Brain Cognitive DevelopmentSM (ABCD) and HEALthy Brain and Child Development (HBCD) Study data all in one place. Simply select your study of interest using the dropdown menu in the left-hand navigation available from all Lasso modules.

Explore the main dashboard to learn more about the number of participants available for each measure.

Navigate to the dashboard module in Lasso and view all the instruments at the same time.  

Or select specific research domains using the drop own menu in the top right corner of the dashboard module to see only the instruments within the research domain of interest.

For file-based data (i.e. imaging or tabular data in BIDs Format), the number of participants for each modality and study visit (session) is consistently displayed for your convenience.

For all areas of the main dashboard, take advantage of the interactive hover-over feature to help you quickly and easily see the number of participants available.

Query the tabulated data to gain a more granular understanding of the number of participants and instruments available for your specific research questions.

Navigate to the Search & Filter module, which will bring you to the Lasso Query Wizard tool.

Select the components relevant to your future analysis: 

  • Research Domains
  • Sessions 
  • Instruments 

Note: If a specific research domain or instrument was not administered in a selected session (or vice versa), it will appear greyed out to prevent invalid queries. 

You can filter by first selecting your research domain(s) of interest. You will then be presented with the available sessions.

After selecting your session(s) of interest, you will be presented with the available instrument(s).

To enhance your experience and improve workflow efficiency, we’ve compiled a few helpful tips for you.

  1. You can search by keyword to quickly locate instruments of interest.
  2. Toggle the instrument search to “Enabled” to show instruments that apply to your current selections
  3. Check the “Hide filtered instruments” box to only display the relevant instruments based on your filtering selections

**You can also start your query by selecting session(s) or instrument(s) of interest first, but this will disable the function of filtering by research domain.

You can apply filters with AND/OR logic. Once you've selected your data parameters, you can refine your results using logical filters: 

Filter Options: 

  1. All administered at least once 
  • Produces a smaller dataset containing only overlapping responses. 
  1. At least one of the selected is administered 
  • Broadens results by including any session where one or more selected variables were administered. 

NOTE: If you select multiple sessions, the query wizard will display the instruments administered across any of the selected sessions (“OR” logic). To see which instruments were administered at a specific session, hover your mouse over the individual session and the associated instruments will be highlighted. In the example screenshot above, after selecting ses-V02 and ses-V03, the query wizard displays the available instruments (in either session) in light grey. The unavailable instruments are in dark grey. Hovering over ses-V03 reveals the instruments available for that specific session in light orange.

NOTE: data will not be available for download until DUC approval, including completing the responsible data use training and passing the associated quiz.

You can also query the tabular data using the Lasso Dictionary Query Tool. Navigate to the Search & Filter module and select the Dictionary Query Tool in the top right corner.

The Lasso Dictionary Query Tool allows you to explore item-level information within each research domain and instrument; this serves as your codebook for the study variables!

NOTE: data will not be available for download until DUC approval, including completing the responsible data use training and passing the associated quiz.

Query the file based (i.e. imaging or tabular data in BIDs Format) data to gain a more granular understanding of the number of participants and modalities available for your specific research questions.

Searching and Filtering for File Based Data

Navigate to the Search & filter module and select File Based Data in the top right corner.  

You will be able to view the raw and derivative datasets from the same page.  

After selecting all the modalities you wish to download, a summary displaying the number of participants, total files, and estimated file size for your selection will appear at the top of the screen.

NOTE: Data will not be available for download until DUC approval, including completing the Responsible Data Use and Biospecimen Training and passing the test.

Downloading File-Based Data

Large datasets—especially those containing high-resolution imaging files—are downloaded using an external desktop application called Globus Connect. This tool provides secure, high-speed data transfers between the Lasso platform and your local machine.

We recommend downloading Globus Connect ahead of time, so you're ready to retrieve file-based data (e.g., imaging or tabular data in BIDS format) as soon as your DUC is approved.

Using Globus Connect Server(Institutional Setup)

If your institution supports the Globus Service (e.g., through GlobusConnect Server), we strongly encourage you to use it. This version:

  1. Connects to institutional or     high-performance storage systems
  2. Enables faster, more reliable     transfers of large datasets

To get started, share the DUC and NIST documentation with your IT department. They can install and configure Globus Connect Server on your behalf. For endpoint configuration, IT staff may refer to the Globus Connect Server documentation or contact Globus Support for assistance.

Using Globus Personal Connect (Individual Use)

If your institution does not support Globus Connect Server, we recommend using Globus Personal Connect for individual data transfers. For installation instructions and details, please refer to the documentation here.

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